Entanglements of Rare Diseases in the Baltic Sea Region (Anthropology of Well-Being: Individual, Community, Society) (Original PDF from Publisher)

By Malgorzata Rajtar, Katarzyna E. Król, Anna Chowaniec, Ewa Ehmke vel Emczynska-Seliga, Jan Frydrych, Roosa Harmo, Filip Rogalski, Malgorzata Skweres-Kuchta, Karoliina Snell, Aaro Tupasela, Kirmo Wartiovaara

Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of “rare” or “chronic” disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.

Product Details

• Publisher ‏ : ‎ Lexington Books (October 16, 2023)
• Language ‏ : ‎ English
• Hardcover ‏ : ‎ 224 pages
• ISBN-10 ‏ : ‎ 1666942383
• ISBN-13 ‏ : ‎ 978-1666942385